“I’m just really grateful. Because I don’t think Korey would still be here if we weren’t involved with you.”
That’s Erin talking about her husband, Korey, who went from a rare, complex stage 4 neuroendocrine cancer diagnosis to remission in less than a year. Sounds too good to be true, I know – but it’s not. This is the power of Precision Oncology.
And it all started with Erin and Korey’s unshakable determination to advocate for better cancer care. 🧬
Erin found CTOAM after standard care had left Korey with no more options. She knew she had to find a way to get him the help he needed…and their three young kids needed her to stay strong.
She refused to give up hope. So she called us.
Our cancer expert, Alex Rolland, immediately sent Korey for comprehensive genetic testing and determined the exact cause of Korey’s cancer. Because of Korey’s incredibly high tumor mutation burden, Alex knew immunotherapy would likely work very well.
After giving this new treatment recommendation to Korey’s oncologist, Korey soon got the immunotherapy he needed…Within just a few months he was feeling dramatically better. He’s now in remission…after standard care had left him with nothing.
Fighting Stage 4 Neuroendocrine Cancer with Precision Oncology
Erin was kind enough to speak with us over Zoom recently to talk about her experience advocating for Korey’s cancer care and working with us. Here’s a bit of what she shared:
“When we had our very first conversation with Alex, he was very realistic and didn’t sugar coat anything. He said to Korey, “you’ve got a pretty rare cancer and there’s not a lot of research into neuroendocrine.” Alex talked about the treatment that Korey had been on previously and justified why the oncologist had chosen it.
And honestly, after we talked with Alex, it was literally days and we had bloodwork set up for Korey. Just how fast the ball got rolling was mind-boggling to me. Alex would check in to see how Korey had been feeling and I think just overall the experience has been really good.
You’ve also been amazing about making sure our oncologist here in Calgary is up-to-speed on all of the test results. Alex has been really good about forwarding studies on immunotherapy with neuroendocrine to her as well. So everyone’s been on the same game plan.
Because at first our oncologist was like, “I’m not doing immunotherapy, that’s not an option.” But then after speaking to Alex, and kind of getting some more background on it, she was like, “okay, let’s do this.”
Which was pretty amazing because, at the beginning, we struggled with her when we wanted to get second, third, fourth opinions. She didn’t like that. But then all of a sudden, you know, she’s been so open to receiving all of this information. So it’s been a huge, huge help for us. One less hurdle, I guess, for us to have to kind of jump over, trying to get Korey this treatment.”
What Erin is Most Grateful For
Erin goes on to share the biggest insights of her and Korey’s experience going from stage 4 neuroendocrine cancer to long-term remission:
“So yeah, overall…I’m just really grateful…
Because – I hate saying it – but I don’t think Korey would be here still based on how aggressive that new tumor became…I mean, honestly, I think if we’d stuck with the plan that was presented to us from Tom Baker in Calgary, I don’t think he’d be here.
I just wish more people were aware of the option to access CTOAM because I think there’s some pretty amazing work to be done. And I think your team is leading that way with a lot of the cancer research stuff…
Because I know, for me, as of right now, I don’t have any regrets. If something happened to Korey sooner rather than later, I don’t have any regrets because I feel like we kind of explored a lot of options – and more so since we got involved with you…
So yeah, I would hands-down recommend CTOAM…you know, you can’t turn back time. I just wish we’d known about you at the time of diagnosis for us. I think it would have saved both of us a lot of stress and all of that. The last five years have been so tough. Had we been involved with you at the very beginning, it would have made everything so much easier.”
Thanks so much for sharing, Erin. We’re so happy that Korey is doing so well.
Get a Second Opinion for Your Diagnosis
For the fastest path to Precision Oncology, register for a Second Opinion with our cancer expert, Alex Rolland.
You can also watch our YouTube videos on Precision Oncology – there are hundreds!on March 24, 2021
Tags: Advocacy, Advocate, Cancer Care, Cancer Patients, Cancer Survivors, Caregivers, Caregiving, Immunotherapy, Neuroendocrine, Precision Oncology, Rare Cancers, Stage IV
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